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Action for M.E. is a UK charity that supports people of all ages living with M.E. Our mission is empowering people with M.E. to fulfil their potential and secure the care and support they need, while working towards a greater understanding of the illness and…
01179 279 551
Atrial Fibrillation Association (AF-A) is a registered charity which focuses on raising awareness of atrial fibrillation (AF) by providing information and support materials for patients and medical professionals involved in detecting, diagnosing and managing atrial fibrillation. AF Association works closely with medical professionals, patients, caregivers,…
01789 867 502
We offer support by telephone, post or email to individuals with congenital or acquired absence of the testes, and to the families of people affected. We offer networking, information and education. The condition is known by several names: Absence of the Testes (congenital or acquired) Anorchidism Anorchia…
07442 164 841
We are a specialist, not for profit organisation. We offer therapeutic help if you, or someone your know, have been affected by a traumatic occurrence. Our therapists have been trained to help sufferers rebuild their lives and move on following a traumatic experience that has…
We can provide support to help you and your family if you are affected by Glycogen Storage Disease (GSD).  We do this by putting people in contact, providing information, issuing newsletters and holding conferences and workshops. Find out more about us from our website or contact us.…
0300 123 2790
We work to stop asthma attacks and hope to cure asthma by funding world leading research and scientists, campaigning for change and supporting people with asthma to reduce their risk of a potentially life threatening asthma attack.We fight asthma in three ways: we fund world class…
0300 222 5800
We provide information and practical support to everyone living with Ataxia-Telangiectasia. We also arrange transport and accommodation for people attending the specialist clinics.  We offer: support and contact between families with a diagnosis of AT support for individuals with AT information about Ataxia-Telangiectasia (available in…
01582 760 733
Regular UK-wide virtual groups for parents, carers, family or friends of people who self-harm (of all ages) AIMS OF THE GROUP To provide a safe virtual space for family and friends of people who self-harm (child or adult) to get support, share experiences, ask for…
We are a group offering contact and support to families of children with Beckwith-Wiedemann Syndrome (BWS). We were formed as a self help group in 1990 by parents of BWS children to share problems and information. We raise awareness of BWS to support and encourage…
01258 817 573
07889 211 000
An acoustic neuroma is a type of brain tumour which affects hearing. We provide information and support to people who are affected by acoustic neuroma and their families. We: publish a newsletter four times a year supply patient information support the non-medical needs of individual…
01246 550 011

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