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We were established in 1981 to support and improve the lives of families affected by Neurofibromatosis. We fund a team of specialist advisors who help patients and their families. We give vital support in homes, schools and hospital clinics, with help over the phone and by offering practical and emotional support. We link…
0208 439 1234
Helpline: 07939 046 030
We are national charity for people with lupus. We provide advice and information on all aspects of the disease, and publish national and regional newsletters.  Fundraising for lupus research and lupus nurses is an essential part of our work. Meetings are held at the convenience…
01708 731 251
We are a UK charity providing information and support to families and individuals affected by any rare chromosome or autosomal dominant single gene disorder and to professionals who work with them. We offer contact with families where someone has the same rare chromosome, gene disorder…
01883 723 356
We are a manufacturer and supplier of wheelchair and occupant restraint systems for wheelchair passenger safety whilst travelling. Our securement systems have integrated occupant lap and shoulder belts for maximum safety and can be mounted on floor pockets, tracks, or bolted to the floor to…
01227 773 035
Fax: 01227 770 035
We are a Charity for helping people affected by Charcot-Marie-Tooth disease (also known as Peroneal Muscular Atrophy and Hereditary Motor and Sensory Neuropathy) and their families in the UK. We offer advice, support and information including: FREEPHONE Helpline for Advice and Support Information Leaflets Website…
0300 323 6316
01202 474 203
We can help you live with tinnitus, by offering advice and support.     We provide: A free and confidential telephone helpline, webchat service, e-mail support and text service. Online support groups and events. Our forum - www.healthunlocked.com/tinnitus-uk Information leaflets written by leading medical professionals, which are distributed…
Freephone Helpline: 0800 018 0527
Office: 0114 250 9933
We offer support by telephone, post or email to individuals with congenital or acquired absence of the testes, and to the families of people affected. We offer networking, information and education. The condition is known by several names: Absence of the Testes (congenital or acquired) Anorchidism Anorchia…
07442 164 841
We provide specialist support for anyone in England, Wales and Northern Ireland living with spina bifida and/or hydrocephalus, and to their parents, families, carers and professional care staff. Register and become a member to receive our magazine 'Together' and other factsheets and booklets. Please contact us…
01733 555 988
We offer information and support to anyone who has undergone surgery to remove or divert the bladder (including urostomy, neo-bladder/reconstruction, mitrofanoff etc). Our branches throughout the UK meet two or three times a year, offering support and discussing new developments.We publish a website, a magazine three…
07812 495 907
We are a patient organisation providing evidence-based information and support to help people live better with thyroid disease. We also fund much-needed research to improve treatments and outcomes for thyroid patients.
Helpline: 01423 810 093

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