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We are a children’s heart charity. We work with individuals and organisations concerned with children and young people who have health and educational needs due to acquired or congenital heart conditions. Congenital Heart Disease (CHD) is the most common birth defect in the UK. Thousands of…
0300 561 0065
We are a national charity, providing information and support to people with Coeliac Disease and Dermatitis Herpetiformis, their friends and family and anyone with an interest in the gluten-free diet. We offer a range of tools and advice to help you manage your diet and…
0333 332 2033
We support people with Cystic Fibrosis, fund research and work to improve standards of care. We promote excellence in research and clinical care, as well as providing practical support and advice to people with Cystic Fibrosis and their families. Our helpline offers support and information for…
Helpline: 0300 373 1000
Diamond Blackfan Anaemia (DBA) is a rare bone marrow failure disorder, usually diagnosed before 12 months of age. DBA patients fail to produce red blood cells properly and may need treatment ranging from monthly blood transfusions to regular steroid treatment, and in some cases bone…
0845 094 1548
Usher syndrome is a genetic or inherited condition that affects hearing, vision and balance. If you have Usher, you can achieve a great deal with the right support. Please see our website for further details.
0300 330 9256
We can provide support to help you and your family if you are affected by Glycogen Storage Disease (GSD). We do this by putting people in contact, providing information, issuing newsletters and holding conferences and workshops. Find out more about us from our website or contact us.…
0300 123 2790
We are a national self help group, providing support and encouragement to anyone with depression, as well as to concerned family and friends. A registered charity, we are run by volunteers who have experienced depression themselves. We have no office or paid staff. The charity is…
We are a national organisation supporting people with mental health needs. Our staff work with organisations to deliver a range of services to meet a persons individual needs, to help them develop, recover and move on to independent living where possible. Support offered can be…
0191 516 3500
Breathe Easy groups provide support and information for people living with a lung condition, and for those who look after them.We hold regular group meetings, usually monthly. You can meet and talk to others, share your experiences and learn from each other. Regular speakers can…
0300 222 5800
We are a charity that raises funds to support research into the causes of brain haemorrhages. We have a support network set up to help victims and their families. We can help you in connection with benefits and aids to assist recovery, as well as…
