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We were established in 1981 to support and improve the lives of families affected by Neurofibromatosis. We fund a team of specialist advisors who help patients and their families. We give vital support in homes, schools and hospital clinics, with help over the phone and by offering practical and emotional support. We link…
0208 439 1234
Helpline: 07939 046 030
We are an independent, voluntary group run by parents whose deaf children have cochlear implants, offering contact, information and events for families whose children already have implants and for those who are considering cochlear implantation for their child. We offer lived experience of the difference that…
07854 543 846
Alex, The Leukodystrophy Charity (Alex TLC) provides invaluable support and information to people affected by leukodystrophy. Leukodystrophies are genetic disorders that mainly affect the white matter of the central nervous system (i.e. the brain or spinal cord). There are more than 100 different known types…
0207 701 4388
We are national charity for people with lupus. We provide advice and information on all aspects of the disease, and publish national and regional newsletters.  Fundraising for lupus research and lupus nurses is an essential part of our work. Meetings are held at the convenience…
01708 731 251
We are a UK charity providing information and support to families and individuals affected by any rare chromosome or autosomal dominant single gene disorder and to professionals who work with them. We offer contact with families where someone has the same rare chromosome, gene disorder…
01883 723 356
We work with children and their families from across the UK to provide a unique, evidence-based therapy called 'Targeted Training.' The children who visit us have cerebral palsy, global developmental delay (GDD), or other problems of movement control. A course of therapy can help them…
01691 404 248
We are a Charity for helping people affected by Charcot-Marie-Tooth disease (also known as Peroneal Muscular Atrophy and Hereditary Motor and Sensory Neuropathy) and their families in the UK. We offer advice, support and information including: FREEPHONE Helpline for Advice and Support Information Leaflets Website…
0300 323 6316
01202 474 203
We can help you live with tinnitus, by offering advice and support.     We provide: A free and confidential telephone helpline, webchat service, e-mail support and text service. Online support groups and events. Our forum - www.healthunlocked.com/tinnitus-uk Information leaflets written by leading medical professionals, which are distributed…
Freephone Helpline: 0800 018 0527
Office: 0114 250 9933
Regular UK-wide virtual groups for parents, carers, family or friends of people who self-harm (of all ages) AIMS OF THE GROUP To provide a safe virtual space for family and friends of people who self-harm (child or adult) to get support, share experiences, ask for…
We provide specialist support for anyone in England, Wales and Northern Ireland living with spina bifida and/or hydrocephalus, and to their parents, families, carers and professional care staff. Register and become a member to receive our magazine 'Together' and other factsheets and booklets. Please contact us…
01733 555 988

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