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Fragile X Syndrome is the most common inherited cause of learning disability. In addition, Fragile X is a family of conditions and multiple members of families may be affected by it in different ways. We provide information and practical guidance to support and empower people…
01371 875 100
The Huntington's Disease Association provides support, advice and a listening ear to people living in families affected by Huntington’s Disease. We also provide advice and training to professionals working with people with Huntington's Disease. We have a website full of information about Huntington's Disease.  We…
0151 3315 444
We support children with heart disorders and their families, whatever the condition, wherever it is treated and have 2,500 families in membership throughout the UK. We offer: Advice and support to families Activity breaks for children with heart conditions Activity breaks for siblings of children…
07949 256 302
Family Fund supports families living across the UK who are who are raising a disabled or seriously ill child or young person up to the age of 17. Our support is focused on those on low incomes with a child/children who have a high level…
01904 550 055
EuansGuide.com is the disabled access review website where disabled people, their families, friends and carers can find and share the accessibility of venues around the UK and beyond. The website shares thousands of experiences and is the go-to tool for many disabled people. Please see…
0131 510 5106
We are a charity committed to both research programmes and individual advocacy support. Our voluntary support group helps over 1,300 individuals suffering from Mucopolysaccharide and related diseases throughout the UK, their families and carers.
0345 389 9901
We are a provider of independent advocacy for children, young people and vulnerable adults.  Please see our website for more information.
08088 081 001
We offer free advice, information and support to people with glaucoma. We produce information, support research into the management and treatment of the condition and aim to improve public awareness of glaucoma. We also campaign for improved services for those with glaucoma. Our mission is to raise awareness of…
Sightline: 01233 64 81 70
The Fostering Network is a UK fostering charity. We are the essential network for fostering, bringing together everyone who is involved in the lives of fostered children. We support foster carers to transform children’s lives and we work with fostering services and the wider sector…
We provide support, assistance and information to families having a child affected with Patau’s syndrome (Trisomy 13) or Edwards syndrome (Trisomy 18) and their related disorders of partial Trisomy, Mosaicism and Deletions. We support families to make choices that are right for them at all stages…

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