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Alex, The Leukodystrophy Charity (Alex TLC) provides invaluable support and information to people affected by leukodystrophy. Leukodystrophies are genetic disorders that mainly affect the white matter of the central nervous system (i.e. the brain or spinal cord). There are more than 100 different known types…
0207 701 4388
We are a Charity for helping people affected by Charcot-Marie-Tooth disease (also known as Peroneal Muscular Atrophy and Hereditary Motor and Sensory Neuropathy) and their families in the UK. We offer advice, support and information including: FREEPHONE Helpline for Advice and Support Information Leaflets Website…
0300 323 6316
01202 474 203
We provide specialist support for anyone in England, Wales and Northern Ireland living with spina bifida and/or hydrocephalus, and to their parents, families, carers and professional care staff. Register and become a member to receive our magazine 'Together' and other factsheets and booklets. Please contact us…
01733 555 988
MS-UK is a national charity to support anyone affected by multiple sclerosis (MS), to empower them to live healthier and happier lives by improving the understanding of MS and providing support where it is needed the most. This includes families, carers, health professionals, friends and colleagues.…
01206 226 500
We provide information and practical support to everyone living with Ataxia-Telangiectasia. We also arrange transport and accommodation for people attending the specialist clinics.  We offer: support and contact between families with a diagnosis of AT support for individuals with AT information about Ataxia-Telangiectasia (available in…
01582 760 733
The Sensory Processing Disorder Parent Support Group was launched in October 2015 with the help of Dawn Dunn, Managing Director of Tree Tops Occupational Therapy after it was felt there was no support group for parents in the North East of England for this clinical…
Arrhythmia Alliance is the UK’s leading heart rhythm charity working to improve the diagnosis, treatment and quality of life for all those affected by arrhythmias.  We provide personalised support and advice to patients, carers and medical professionals all over the UK through our dedicated helpline, information…
01789 867 501
We provide information and support about this recessive genetic iron overload disorder and work to raise awareness and encourage research. We provide advice and support to those with the condition as well as their family and friends. Haemochromatosis if identified early can be readily treated…
0303 040 1102
Small Steps - Seize the Day is a small charity based in the north east of England that supports the families of children with Epilepsy or other similar neurological problems. In particular, those with complex health needs, cerebral palsy and pmld. We work with local…
07527 976 747
Every week in the UK at least 12 young people die of undiagnosed heart conditions. Cardiac Risk in the Young (CRY) is a UK charity supporting those affected by conditions that can cause young sudden cardiac death. We provide bereavement support and fund expert pathology investigations at…
01737 363 222

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