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SOS!SEN is a small charity dedicated to offering independent, legally based advice on Special Educational Needs to parents and carers. We aim to support and empower people to navigate the legal maze and challenge decisions to get the right education for their child.    We offer advice on:  getting the right help…
0208 538 3731
We are a North East charity which offers support and guidance to patients with dystonia or other similar condition and their loved ones. The name A.D.D.E.R. stands for Action for Dystonia, Diagnosis, Education and Research. With Dystonia, one minute you are fine and the next you…
0191 492 2793
Every week in the UK at least 12 young people die of undiagnosed heart conditions. Cardiac Risk in the Young (CRY) is a UK charity supporting those affected by conditions that can cause young sudden cardiac death. We provide bereavement support and fund expert pathology investigations at…
01737 363 222
We are Contact, the charity for families with disabled children. We support families with the best possible guidance and information. We bring families together to support each other. And we help families to campaign, volunteer and fundraise to improve life for themselves and others.
Helpline: 0808 808 3555
Speech and Language Link empower SENCos, teachers and TAs in their work with speech, language and communication needs (SLCN)to ensure that every child is supported in realising their full potential.We do this through our range of online, speech and language packages which include assessments and…
0333 577 0784
Positive about Down syndrome is a DSUK (Down Syndrome UK) initiative Registered Charity. Positive about Down syndrome provides information and support to new and expectant parents of a little one with Down syndrome. They have an amazing range of online support for families, they know…
0330 111 2121
We work across the UK to support people of all ages who find communication difficult because they have little or no clear speech. Our work is with the Augmentative and Alternative Communication (AAC) needs of people with complex communication needs. AAC includes systems such as eye pointing,…
0113 343 1533
We provide information and support about this recessive genetic iron overload disorder and work to raise awareness and encourage research. We provide advice and support to those with the condition as well as their family and friends. Haemochromatosis if identified early can be readily treated…
0303 040 1102
We offer information and support for anyone affected by or concerned about cancer.  We can be contacted by telephone, email  or by dropping in to one of our centres (please ring before making a special journey).  Locations Macmillan Cancer Information and Support CentreMain EntranceDarlington Memorial…
01388 455 231
We offer contact and support to sufferers of Fanconi's Anaemia and their families. Our telephone helpline is available to anyone involved in this rare, genetic condition.  
0300 330 1410

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