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We are an independent, voluntary group run by parents whose deaf children have cochlear implants, offering contact, information and events for families whose children already have implants and for those who are considering cochlear implantation for their child. We offer lived experience of the difference that…
07854 543 846
Alex, The Leukodystrophy Charity (Alex TLC) provides invaluable support and information to people affected by leukodystrophy. Leukodystrophies are genetic disorders that mainly affect the white matter of the central nervous system (i.e. the brain or spinal cord). There are more than 100 different known types…
0207 701 4388
We provide information, emotional support and advice to the families of and young visually impaired people. We offer a nationwide mentoring service to young VIP's enabling the sharing of experiences and providing support for each other. We also offer a friendly Parent Support Group.  We run…
07464 351 958
An online support group for parents/carers of autistic children. In this group, alongside the friendship and non-judgemental support from fellow parents who genuinely understand, you will find: Tips & advice - helping you to help your child. Regular expert guest speakers - ask your questions…
RSBC are here to support you and your family if you have a blind or partially sighted child aged 0 - 25. We believe that children and young people need a strong family to be able to grow and flourish and sometimes when you receive…
0203 198 0225
We provide information and support to parents and carers of individuals with severe learning disabilities whose behaviour challenges. We have information sheets, DVDs, a newsletter and a website. Information sheets can be ordered from our office or downloaded from our website. Support is provided through email…
General Enquiries: 01634 838 739
Family Support Line 0300 666 0126
We are a Charity for helping people affected by Charcot-Marie-Tooth disease (also known as Peroneal Muscular Atrophy and Hereditary Motor and Sensory Neuropathy) and their families in the UK. We offer advice, support and information including: FREEPHONE Helpline for Advice and Support Information Leaflets Website…
0300 323 6316
01202 474 203
We provide specialist support for anyone in England, Wales and Northern Ireland living with spina bifida and/or hydrocephalus, and to their parents, families, carers and professional care staff. Register and become a member to receive our magazine 'Together' and other factsheets and booklets. Please contact us…
01733 555 988
MS-UK is a national charity to support anyone affected by multiple sclerosis (MS), to empower them to live healthier and happier lives by improving the understanding of MS and providing support where it is needed the most. This includes families, carers, health professionals, friends and colleagues.…
01206 226 500
We provide information and practical support to everyone living with Ataxia-Telangiectasia. We also arrange transport and accommodation for people attending the specialist clinics.  We offer: support and contact between families with a diagnosis of AT support for individuals with AT information about Ataxia-Telangiectasia (available in…
01582 760 733

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