County Durham's Families Information Service

We are a UK-wide charity who support children, young people, their families and professionals to come to terms with a brain injury, and how to deal with the uncertainty that the future holds. An acquired brain injury will affect each person differently however there are many common issues that people can face. …

0303 303 2248 (Helpline)
01869 341 075 (Admin)

• OOOPS Group is a mutual support group which has the primary aim of helping people who have had their colon removed or are having problems with their colon. The group was started in March 2016. It is estimated that there are more than 20,000…

0191 586 3520

We are an independent, voluntary group run by parents whose deaf children have cochlear implants, offering contact, information and events for families whose children already have implants and for those who are considering cochlear implantation for their child. We offer lived experience of the difference that…

07854 543 846

Alex, The Leukodystrophy Charity (Alex TLC) provides invaluable support and information to people affected by leukodystrophy. Leukodystrophies are genetic disorders that mainly affect the white matter of the central nervous system (i.e. the brain or spinal cord). There are more than 100 different known types…

0207 701 4388

We provide information, emotional support and advice to the families of and young visually impaired people. We offer a nationwide mentoring service to young VIP's enabling the sharing of experiences and providing support for each other. We also offer a friendly Parent Support Group. We run…

07464 351 958

An online support group for parents/carers of autistic children. In this group, alongside the friendship and non-judgemental support from fellow parents who genuinely understand, you will find: Tips & advice - helping you to help your child. Regular expert guest speakers - ask your questions…

RSBC are here to support you and your family if you have a blind or partially sighted child aged 0 - 25. We believe that children and young people need a strong family to be able to grow and flourish and sometimes when you receive…

0203 198 0225

We provide information and support to parents and carers of individuals with severe learning disabilities whose behaviour challenges. We have information sheets, DVDs, a newsletter and a website. Information sheets can be ordered from our office or downloaded from our website. Support is provided through email…

General Enquiries: 01634 838 739
Family Support Line 0300 666 0126

We are a Charity for helping people affected by Charcot-Marie-Tooth disease (also known as Peroneal Muscular Atrophy and Hereditary Motor and Sensory Neuropathy) and their families in the UK. We offer advice, support and information including: FREEPHONE Helpline for Advice and Support Information Leaflets Website…

0300 323 6316
01202 474 203

We provide specialist support for anyone in England, Wales and Northern Ireland living with spina bifida and/or hydrocephalus, and to their parents, families, carers and professional care staff. Register and become a member to receive our magazine 'Together' and other factsheets and booklets. Please contact us…

01733 555 988

County Durham's Families Information Service

Child Brain Injury Trust

OOOPS

Cochlear Implanted Children's Support Group

Alex, The Leukodystrophy Charity (Alex TLC)

LOOK UK - Supporting Visually Impaired Young People to Thrive

Autism and Parent Online Support Group

Royal Society for Blind children

Challenging Behaviour Foundation

CMT United Kingdom

SHINE - Spina Bifida Hydrocephalus Information Networking Equality

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