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We support children with heart disorders and their families, whatever the condition, wherever it is treated and have 2,500 families in membership throughout the UK. We offer: Advice and support to families Activity breaks for children with heart conditions Activity breaks for siblings of children…
07949 256 302
Rainbow Trust Children’s Charity supports seriously ill children and their families in the family home and local community. Families who have a child or young person up to the age of 18 with a life threatening or terminal condition (for example cancer, some neurological conditions,…
0191 300 1601
We help people who have a spinal injury or any type of brain damage such as that caused by cancer, haemorrhage, brain surgery, head injuries and neurological conditions. Please see our website for further details.
0161 707 6441
We are a national charity providing support and information to anyone affected by brittle bones (Osteogenesis Imperfecta). We offer a free, confidential support and signposting service to help with day to day issues such as education, work and travel.  Please see our website for further…
01382 204 446
We are a children’s heart charity. We work with individuals and organisations concerned with children and young people who have health and educational needs due to acquired or congenital heart conditions. Congenital Heart Disease (CHD) is the most common birth defect in the UK. Thousands of…
0300 561 0065
We are a national charity, providing information and support to people with Coeliac Disease and Dermatitis Herpetiformis, their friends and family and anyone with an interest in the gluten-free diet. We offer a range of tools and advice to help you manage your diet and…
0333 332 2033
We support people with Cystic Fibrosis, fund research and work to improve standards of care. We promote excellence in research and clinical care, as well as providing practical support and advice to people with Cystic Fibrosis and their families. Our helpline offers support and information for…
Helpline: 0300 373 1000
Diamond Blackfan Anaemia (DBA) is a rare bone marrow failure disorder, usually diagnosed before 12 months of age. DBA patients fail to produce red blood cells properly and may need treatment ranging from monthly blood transfusions to regular steroid treatment, and in some cases bone…
0845 094 1548
We are a national support organisation for people with scoliosis, a developmental disorder resulting in a sideways curving and twisting of the spine. Please see our website for further details.
0208 964 1166
Usher syndrome is a genetic or inherited condition that affects hearing, vision and balance. If you have Usher, you can achieve a great deal with the right support. Please see our website for further details.
0300 330 9256

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