County Durham's Families Information Service

Rainbow Trust Children’s Charity supports seriously ill children and their families in the family home and local community. Families who have a child or young person up to the age of 18 with a life threatening or terminal condition (for example cancer, some neurological conditions,…

0191 300 1601

We are a charity committed to both research programmes and individual advocacy support. Our voluntary support group helps over 1,300 individuals suffering from Mucopolysaccharide and related diseases throughout the UK, their families and carers.

0345 389 9901

We provide support, assistance and information to families having a child affected with Patau’s syndrome (Trisomy 13) or Edwards syndrome (Trisomy 18) and their related disorders of partial Trisomy, Mosaicism and Deletions. We support families to make choices that are right for them at all stages…

We help and support people with Down’s Syndrome and their families and friends across County Durham, Northumberland, Tyneside, Wearside and Teesside. Please see our website for further details.

0870 765 2121
Text: 07740 511 814

We're the charity dedicated to helping families with children with brain conditions discover a better life together. Families where a child has a brain condition face challenges every day. Just to learn, play, make friends, enjoy and experience the world can feel difficult, even impossible.…

0800 328 1159

We are a national charity providing support and information to anyone affected by brittle bones (Osteogenesis Imperfecta). We offer a free, confidential support and signposting service to help with day to day issues such as education, work and travel. Please see our website for further…

01382 204 446

We support people affected by Motor Neurone Disease (MND). We promote research into the causes and treatments of the condition to ensure those affected by the disease can secure the care and support they need. We provide: Information on all aspects of the disease A helpline…

0808 802 6262

At Back Up we know a spinal cord injury can be devastating, but we believe that it shouldn't prevent anyone from getting the most out of life. Back Up is for everyone affected by spinal cord injury regardless of age, level of injury, or background.…

0208 875 1805

This group was set up to support families of children who have had or presently have Kawasaki Disease and to raise awareness of the condition among the general public and health professionals. Occasional family days are held and we assist research into the disease in…

0247 661 2178

We meet to hear talks about research and new developments for treating diabetes, as well as information to help understand the condition. Meeting other diabetics can help members to share problems, gain confidence and make new friends. Our members raise funds for research into the…

0191 370 0640

County Durham's Families Information Service

Rainbow Trust Children's Charity

Society for Mucopolysaccharide Diseases

SOFT UK

Down's Syndrome North East

Cerebra

Brittle Bone Society

Motor Neurone Disease Association - Durham and Darlington Group

Back Up

Kawasaki Disease Support Group

Diabetes UK - Durham Group

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