We are a charity who support families, raise awareness and facilitate research into the neurodegenerative diseases known as Batten Disease.

We offer guidance and support to families and the professionals who work with them.  We increase awareness of the disease and fund research to identify potential therapies and a cure.

We support families from diagnosis, through their journey with Batten disease to enable you and your family to have the best quality of life. Please contact us if you feel you need our support.