Alex, The Leukodystrophy Charity (Alex TLC)

Alex, The Leukodystrophy Charity (Alex TLC) provides invaluable support and information to people affected by leukodystrophy.

Leukodystrophies are genetic disorders that mainly affect the white matter of the central nervous system (i.e. the brain or spinal cord). There are more than 100 different known types of  leukodystrophy, including some so rare they only affect one or two individuals.

Established in 2004 we are an internationally recognised centre of excellence and the only UK charity providing support and information to people affected by any of the leukodystrophy conditions worldwide.

We offer condition information, one to one support, peer support, research updates and opportunities to connect with others in a similar situation to yourself.

When is it on?

Time of day
Morning
Afternoon
Session information
Monday to Friday

Who to contact

Telephone
0207 701 4388
E-mail
info@alextlc.org
Website
Alex, The Leukodystrophy Charity
Notes

Charity number: 1106008

Other details

Cost description
Our support is free to individuals and families affected by leukodystrophies. We also offer free advice and information to professionals. Please contact us info@alextlc.org for further information.
Referral required?
No
Referral and availability notes

Individuals, families and professionals can contact us, you do not need to be referred to the charity to receive support from us.

Age range
All ages
Disclaimer

Durham County Council's Families Information Service does not promote nor endorse the services advertised on this website. Anyone seeking to use/access such services does so at their own risk and may make all appropriate enquiries about fitness for purpose and suitability to meet their needs.
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