Nystagmus Network

The Nystagmus Network is a registered charity in England and Wales supporting people living with nystagmus. Nystagmus is a complex eye condition, characterised by involuntary movements of the eye. The eyes appear to wobble or flicker from side to side, up and down or round and round. Nystagmus causes impaired vision, affecting the ability to focus, speed and depth perception and facial recognition. At least 1 in 1,000 people are born with nystagmus and many more acquire the condition later in life.

The charity was founded in 1984 by Vivien Jones after her son was diagnosed with nystagmus when he was three months old. It has grown exponentially from very humble beginnings to the hi-tech digital online presence of today. The Nystagmus Network provides support and information, promotes a better understanding of nystagmus through an annual Nystagmus Awareness Day on 20 June and throughout the year and funds research to find effective treatments. Through its support services, the Nystagmus Network ensures that, following diagnosis, there is somewhere for a family to turn to.

When is it on?

Time of day
Morning
Afternoon
Evening
Session information
Telephone support available Monday to Friday 9.00am - 5.00pm
Internet access is always available

Who to contact

Contact name
Sue Ricketts
Contact position
Executive Information and development manager
Telephone
01427 718 093
E-mail
info@nystagmusnet.org
Website
Nystagmus Network

Other details

Cost description
No charge for our services however membership is available but not a requirement for free support and information
Referral required?
No
Referral and availability notes

Self referral via phone/email

Age range
All ages
Disclaimer

Durham County Council's Families Information Service does not promote nor endorse the services advertised on this website. Anyone seeking to use/access such services does so at their own risk and may make all appropriate enquiries about fitness for purpose and suitability to meet their needs.
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