Prader-Willi Syndrome Association UK

We are a support group for people with Prader-Willi Syndrome (PWS).

We provide:

  • Support, advice and contact with others.
  • Information about PWS.
  • Regional groups with local meetings.
  • Training days for professionals from health, education, social services and residential and community care.
  • National conference.
  • A newsletter which is published four times a year.
  • A full publication and book list, which can be sent on request.
  • Support and accessible information to people with PWS.
  • We hold family days throughout the UK, Christmas parties and family weekends. We raise funds for research and care work.

Contact us or visit our website for more information.

When is it on?

Session information
9.00am - 5.00pm

Who to contact

Contact name
Susan Passmore
Contact position
Chief Executive
01332 365 676

Charity number 1155846, Adventurous activities licensing scheme.

Where to go

Prader-Willi Syndrome Association
Suite 4.4 Litchurch Plaza
Litchurch Lane
DE24 8AA

Other details

Cost description
New Diagnosis/Contact (Free first year)
Person with PWS 18+ (Free)
Individual/Professional £24 per year
Household £36 per year
Non UK £50 per year
Lifetime Membership £500
Corporate Membership - please contact the Derby office.

Local Offer

Local Offer description

The first floor of the premises is fully accessible.


Durham County Council's Families Information Service does not promote nor endorse the services advertised on this website. Anyone seeking to use/access such services does so at their own risk and may make all appropriate enquiries about fitness for purpose and suitability to meet their needs.

Journey planner

Address: Suite 4.4 Litchurch Plaza  Litchurch Lane  Derby 

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