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Every week in the UK at least 12 young people die of undiagnosed heart conditions. Cardiac Risk in the Young (CRY) is a UK charity supporting those affected by conditions that can cause young sudden cardiac death. We provide bereavement support and fund expert pathology investigations at…
01737 363 222
We are Contact, the charity for families with disabled children. We support families with the best possible guidance and information. We bring families together to support each other. And we help families to campaign, volunteer and fundraise to improve life for themselves and others.
Helpline: 0808 808 3555
OCD Action is the largest national charity focusing on Obessive Compulsive Disorder (OCD) and related conditions such as Body Dismorphic Disorder (BDD), Compulsive Skin Picking (CPS), and Trichotillomania.     We provide support and information to anybody affected by OCD or a related condition and…
0300 636 5478
We are a group who aim to reduce the isolation of disabled lesbian and bisexual women of all ages. We have a national friendship network made up of disabled and non-disabled lesbian and bisexual women. We produce a quarterly newsletter in print, large print, tape…
We provide information and support about this recessive genetic iron overload disorder and work to raise awareness and encourage research. We provide advice and support to those with the condition as well as their family and friends. Haemochromatosis if identified early can be readily treated…
0303 040 1102
We can provide you with accurate information on the herpes simplex virus. This viral skin condition can cause cold sores on the face, whitlows on the fingers, or herpes on the genitals, or on any other skin area where it has gained entry. We provide…
0845 123 2305
We offer contact and support to sufferers of Fanconi's Anaemia and their families. Our telephone helpline is available to anyone involved in this rare, genetic condition.  
0300 330 1410
ACLT is a 40+ time award-winning charity committed to providing hope to patients living with blood cancer and illnesses where a matched donor (stem cell, blood, or organ) is required to save a life. Our work is driven by a belief that no one should…
0203 757 7700
PANS (paediatric autoimmune neuropsychiatric syndrome) and PANDAS (paediatric autoimmune neuropsychiatric syndrome associated with strep) are devastating neuropsychiatric conditions that are currently poorly recognised, diagnosed and supported both medically and in schools.   One estimate suggests that up to 1 in 200 children suffer from this condition. Resources for parents including diagnostic criteria and details of local support…
07425 856 181
As part of the National CJD Surveillance Unit, the National CJD Care Team was set up in 2001 to monitor cases of Creutzfeldt-Jacob Disease throughout the United Kingdom. When a patient is referred to us, once a diagnosis of probable or possible CJD is made, our…
0131 537 2128
Fax: 0131 343 1404

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