We are a national charity who support people with Vitiligo. We can offer you support and understanding, and practical advice on coping with the condition. Our website is regularly updated and we publish a newsletter called "Dispatches" which will keep you in touch with the latest research,…
0800 018 2631
We offer support to people who are affected by all forms of CJD. We support people who have been told that they are at a higher risk of CJD and provide up-to-date information on CJD in all forms including a national helpline, booklets and a…
0800 085 3527
01630 673 993
We are an independent, voluntary group run by parents whose deaf children have cochlear implants to help others whose children already have implants and those who are considering cochlear implantation for their child. We offer first-hand experience of the difference that cochlear implantation can make to…
0161 798 4689
We are a charity offering support and information relating to heart conditions associated with Down's Syndrome. We can offer you advice, support and information but we are not a substitute for a qualified medical opinion. We will try to support you and your family before,…
0300 102 1644
Fax: 0300 102 1645
Rett UK makes the lives of those affected by the devastating disorder, Rett Syndrome, more bearable and give families hope for the future. We provide professional support to people living with Rett syndrome across the UK. Over 1,500 UK families are affected by Rett Syndrome…
0158 279 8911
We are a support group for people with Prader-Willi Syndrome (PWS). We provide: Support, advice and contact with others. Information about PWS. Regional groups with local meetings. Training days for professionals from health, education, social services and residential and community care. National conference. A newsletter…
01332 365 676
Gaucher Disease is an inherited, enzyme deficiency, disorder. We are a registered charity and work to meet the needs of people suffering from this disorder. Our services include: Providing information about the disorder to keep families, doctors and specialist advisers up to date with the…
01453 549 231
Fax: 01453 549 231
We offer advice, contact and support to sufferers of Perthes Disease and their families. We also offer support on a number of other diseases including Osgood Schlatter Disease, Severs Disease, Kohlers Disease and Multiple Epiphyseal Dysplasia. We offer: a telephone helpline contact with local families of…
01483 306637
We are a registered charity providing information, advice and educational materials for people with Psoriasis and Psoriatic Arthritis, their carers and healthcare providers. Our information is free. Please contact us for details of forthcoming meetings and events.
01923 672 837
We aim to support people with cancer and their families. Developed by doctors, nurses, therapists and people with cancer, The Bristol Approach uses a range of complementary therapies and self-help techniques to help people change the way they live with cancer and to deal with the specific…
0303 3000 118

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