We are a support group for people with Prader-Willi Syndrome (PWS). We provide: Support, advice and contact with others. Information about PWS. Regional groups with local meetings. Training days for professionals from health, education, social services and residential and community care. National conference. A newsletter…
01332 365 676
Gaucher Disease is an inherited, enzyme deficiency, disorder. We are a registered charity and work to meet the needs of people suffering from this disorder. Our services include: Providing information about the disorder to keep families, doctors and specialist advisers up to date with the…
01453 549 231
Fax: 01453 549 231
We offer advice, contact and support to sufferers of Perthes Disease and their families. We also offer support on a number of other diseases including Osgood Schlatter Disease, Severs Disease, Kohlers Disease and Multiple Epiphyseal Dysplasia. We offer: a telephone helpline contact with local families of…
01483 306637
We are a registered charity providing information, advice and educational materials for people with Psoriasis and Psoriatic Arthritis, their carers and healthcare providers. Our information is free. Please contact us for details of forthcoming meetings and events.
01923 672 837
We aim to support people with cancer and their families. Developed by doctors, nurses, therapists and people with cancer, The Bristol Approach uses a range of complementary therapies and self-help techniques to help people change the way they live with cancer and to deal with the specific…
0303 3000 118
We offer information and support to anyone who has undergone surgery to remove or divert the bladder (including urostomy, neo-bladder/reconstruction, mitrofanoff etc). Our branches throughout the UK and Ireland meet two or three times a year, offering support and discussing new developments.We publish a magazine three…
01386 430 140
We can provide online support to you if you are affected by E.coli O157. We can provide information about the condition or put you in touch with people who have suffered from illness in the past. Young children and the elderly are the most vulnerable…
0208 573 8558
We offer support, information and advice to families affected by Fragile X Syndrome and to their professionals. Our activities include promotion of research and some conferences on all aspects of Fragile X Syndrome. Our publications include a regular newsletter, information booklets and leaflets. We hold family events in England and…
01371 875 100
We are the UK’s leading charity for children with brain injury. Our national specialist centre is in Tadworth, Surrey, where we provide rehabilitation to children with acquired brain injury and specialist medical/transitional care to children with complex health needs. We also run The Children’s Trust School, a non-maintained…
01737 365 080
We provide information and support to parents and carers of individuals with severe learning disabilities and challenging behaviour. We have information sheets, DVDs, a newsletter and a website. Information sheets can be ordered from our office or downloaded from our website. Support is provided through email…
01634 838 739
0300 666 0126

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