Whether you have just been diagnosed with Retinitis Pigmentosa (or one of the many related inherited retinal conditions) or have known about the condition for a while, we can support you and your family. Our website has lots of information to help you. We also produce a…
01280 821 334 (office)
0845 123 2354 (helpline)
The National Deaf Children’s Society (NDCS) is a charity dedicated to creating a world without barriers for every deaf child. We provide free impartial and unbiased information to families, empowering them to make informed choices for their child. We provide information on all aspects of…
0808 800 8880
Tired Out is Family Fund's sleep support hub for families raising disabled and seriously ill children to find help and information about sleep issues. The hub is a website and was created by Family Fund in partnership with charities such as Scope, National Autistic Society…
We are Contact, the charity for families with disabled children. We support families with the best possible guidance and information. We bring families together to support each other. And we help families to campaign, volunteer and fundraise to improve life for themselves and others.
Helpline: 0808 808 3555
We provide support, assistance and information to families having a child affected with Patau’s syndrome (Trisomy 13) or Edwards syndrome (Trisomy 18) and their related disorders of partial Trisomy, Mosaicism and Deletions. We support families to make choices that are right for them and at all…
STARS, or Syncope Trust And Reflex anoxic Seizures, aims to ensure that anyone presenting with unexplained loss of consciousness receives the correct diagnosis, the appropriate treatment, informed support and sign posting to the appropriate medical professional.  STARS offers information and advice to patients, carers and…
01789 867 503
We work across the UK to support people of all ages who find communication difficult because they have little or no clear speech. Our work is with the augmentative and alternative communication (AAC) needs of people with complex communication needs. AAC systems includes systems such as eye…
0113 343 1533
We offer free advice, information and support to people with glaucoma. We produce information, support research into the management and treatment of the condition, and aim to improve public awareness of glaucoma. We also campaign for improved services for those with glaucoma. Our mission is to raise awareness of…
01233 64 81 64
Sightline: 01233 64 81 70
We provide specialist physiotherapy assessment, advice, recommendation and interventions for children and young people with a range of physical difficulties and disabilities. Early specialist intervention and management of conditions or physical difficulties is known to improve outcomes for children/young people. It is also beneficial for long…
0191 387 6346
The Paediatric Physiotherapy Service offers assessment, expert advice, a programme of therapy if appropriate, equipment if appropriate and review, to children who have a physical disability or motor delay. We also give advice on appropriate aids, appliances and equipment. We offer one-to-one sessions, Pilates and Hydrotherapy. Referral…
0191 387 6346

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