We aim to support people with cancer and their families. Developed by doctors, nurses, therapists and people with cancer, The Bristol Approach uses a range of complementary therapies and self-help techniques to help people change the way they live with cancer and to deal with the specific…
0303 3000 118
We offer information and support to anyone who has undergone surgery to remove or divert the bladder (including urostomy, neo-bladder/reconstruction, mitrofanoff etc). Our branches throughout the UK and Ireland meet two or three times a year, offering support and discussing new developments.We publish a magazine three…
01386 430 140
Our epilepsy service covers the County Durham and Darlington NHS Trust area. We work alongside Paediatricians with a special interest in epilepsy and neurologists. Our aim is to educate families about epilepsy. In partnership with families, we develop care plans for schools and educate schools and nurseries about epilepsy. We…
01388 455 307
We offer support, information and advice to families affected by Fragile X Syndrome and to their professionals. Our activities include promotion of research and some conferences on all aspects of Fragile X Syndrome. Our publications include a regular newsletter, information booklets and leaflets. We hold family events in England and…
01371 875 100
We provide specialist support for anyone in England, Wales and Northern Ireland living with spina bifida and/or hydrocephalus, and to their parents, families, carers and professional care staff. Register and become a member to receive our magazine 'Together' and other factsheets and booklets. Please contact us…
01733 555 988
We provide information and support to parents and carers of individuals with severe learning disabilities and challenging behaviour. We have information sheets, DVDs, a newsletter and a website. Information sheets can be ordered from our office or downloaded from our website. Support is provided through email…
General Enquiries: 01634 838739
Family Support Line 0300 666 0126
We provide support, advice and a listening ear to people living in families affected by Huntington’s Disease. We also provide advice and training to professionals working with people with Huntington's Disease. We publish information factsheets and have a network of Specialist Huntington's Disease Advisers covering…
0191 262 2358
We support children with heart disorders and their families, whatever the condition, wherever it is treated and have 2,500 families in membership throughout the UK. We offer: Advice and support to families Activity breaks for children with heart conditions Activity breaks for siblings of children…
Anxiety UK is run by sufferers and ex-sufferers of anxiety disorders. We can provide support and help if you’ve been diagnosed with, or suspect you may have an anxiety condition. With our help you can start to recover your confidence and forget your fear. We…
Infoline: 03444 775 774
Text Service: 07537 416 905
We are a charity commited to both research programmes and individual advocacy support. Our voluntary support group helps over 1,300 individuals suffering from Mucopolysaccharide and related diseases throughout the UK, their families and carers.We are entirely supported by voluntary donations and fund-raising, and run by our members themselves.Our aims…
0345 389 9901

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