Williams Syndrome is a complex, rare and sporadic gene-deletion disorder affecting development, learning, heart and blood vessels and causing a range of mental and physical conditions.We support research and provides help and support for families with affected children. Regional contacts around the country (all parents…
An enhanced local service for children with musculoskeletal conditions is based within the Rheumatology department at University Hospital of North Durham. We have has dedicated clinical nurse specialists, additional specialist nursing support and therapies all of which provide comprehensive care.
0191 333 2333
We provide personal development services, vocational rehabilitation, access to work support and community integration services to anyone within the North East of England with an acquired brain injury or neurological condition. We are also able to provide assessment services though our in-house consultant clinical neuropsychologist.
0191 232 0234
Fax: 0191 230 4307
We can support you if you are affected by Guillain-Barré syndrome, chronic inflammatory demyelinating polyradiculoneuropathy (CIDP) and other inflammatory neuropathies. We also fund research into these devastating illnesses. We offer: Emotional support, including visits, emails or phone calls from people who themselves have personal experience of the conditions.…
01529 469 910
Fax: 01529 469 915
We provide specialist medical and nursing care for people with life limiting conditions from across North Durham. The Hospice is based in the historic Park House in Merryoaks, close to the centre of Durham. Patients and relatives are welcome to enjoy the five acres of…
0191 386 1170
We are a mental health youth board for the North East with over 100 members. We aim to provide support, guidance and representation to young people living in the North East between the ages of 11-25 years who have, or know someone who has, mental health…
0191 477 9966
We are a national charity supporting individuals and families affected by Epidermolysis Bullosa (EB) – a painful genetic skin blistering condition which, in the worst cases, can be fatal. We can provide you with emotional and practical support, financial advice and help, respite breaks, and information about…
01344 771 961
Fax: 01344 762 661
Diamond Blackfan Anaemia (DBA) is a rare bone marrow failure disorder, usually diagnosed before 12 months of age. DBA patients fail to produce red blood cells properly and may need treatment ranging from monthly blood transfusions to regular steroid treatment, and in some cases bone…
0845 094 1548
We promote the general welfare of patients with Immune Idiopathic Thrombocytopenic Purpura (ITP) and families of children with the condition. We provide: patient and family support advice on referrals an information pack a quarterly newsletter a patient registry database a holiday factsheet a healthcare card (patient…
01234 376 559
We can offer you a range of tailored services if you require personal care or support due to physical or learning disability. Our staff and services are flexible and can support you at home and in the community. You choose how much help you need.…
0845 034 5652
07802 679 747

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