We provide support, assistance and information to families having a child affected with Patau’s syndrome (Trisomy 13) or Edwards syndrome (Trisomy 18) and their related disorders of partial Trisomy, Mosaicism and Deletions. We support families to make choices that are right for them and at all…
STARS, or Syncope Trust And Reflex anoxic Seizures, aims to ensure that anyone presenting with unexplained loss of consciousness receives the correct diagnosis, the appropriate treatment, informed support and sign posting to the appropriate medical professional.  STARS offers information and advice to patients, carers and…
01789 867 503
We provide specialist physiotherapy assessment, advice, recommendation and interventions for children and young people with a range of physical difficulties and disabilities. Early specialist intervention and management of conditions or physical difficulties is known to improve outcomes for children/young people. It is also beneficial for long…
0191 387 6346
We are a national charity who support people with Vitiligo. We can offer you support and understanding, and practical advice on coping with the condition. Our website is regularly updated and we publish a newsletter called "Dispatches" which will keep you in touch with the latest research,…
0800 018 2631
We offer support to people who are affected by all forms of CJD. We support people who have been told that they are at a higher risk of CJD and provide up-to-date information on CJD in all forms including a national helpline, booklets and a…
0800 085 3527
01630 673 993
We improve the health and wellbeing of people living with HIV. We empower young people to make safe and healthy relationship choices. We also challenge stigma and raise awareness of HIV. We provide HIV support groups and HIV one-to one-support in the home or community.…
07989 155 175
Rett UK makes the lives of those affected by the devastating disorder, Rett Syndrome, more bearable and give families hope for the future. We provide professional support to people living with Rett syndrome across the UK. Over 1,500 UK families are affected by Rett Syndrome…
0158 279 8911
We offer care and support to help you live independently at home. Our services include: personal care domestic services mental health and dementia care learning disability support end of life care respite care night sits
0191 377 3040
Fax: 0191 373 3040
We are a support group for people with Prader-Willi Syndrome (PWS). We provide: Support, advice and contact with others. Information about PWS. Regional groups with local meetings. Training days for professionals from health, education, social services and residential and community care. National conference. A newsletter…
01332 365 676
Gaucher Disease is an inherited, enzyme deficiency, disorder. We are a registered charity and work to meet the needs of people suffering from this disorder. Our services include: Providing information about the disorder to keep families, doctors and specialist advisers up to date with the…
01453 549 231
Fax: 01453 549 231

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