We provide support, assistance and information to families having a child affected with Patau’s syndrome (Trisomy 13) or Edwards syndrome (Trisomy 18) and their related disorders of partial Trisomy, Mosaicism and Deletions. We support families to make choices that are right for them and at all…
We offer information, support and advice to parents of children affected by a growth condition. We specialise in Russell Silver Syndrome and Sotos Syndrome, but many other growth conditions are also covered. We offer contact with other families and gives information and support.  Our newsletter is produced…
0208 995 2057

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