As part of the National CJD Surveillance Unit, the National CJD Care Team was set up in 2001 to monitor cases of Creutzfeldt-Jacob Disease throughout the United Kingdom. When a patient is referred to us, once a diagnosis of probable or possible CJD is made, our…
0131 537 2128
Fax: 0131 343 1404
We provide information and support about this recessive genetic iron overload disorder and work to raise awareness and encourage research. We provide advice and support to sufferers. A handbook and a quarterly newsletter is sent to members and we hold an annual conference. We have…
03030 401 102
We are a charity for people affected by the long-term, disabling condition myalgic encephalomyelitis (ME), sometimes diagnosed as chronic fatigue syndrome (CFS, or ME/CFS). We campaign for more recognition, research, better care and benefits for ME sufferers and to raise awareness with Government, health care…
01179 279 551
We provide assistance with the cost of holidays and/or respite breaks for young people aged 17 and under with a physical or mental disability. Only applications for this purpose will be considered. Applications on behalf of groups of children, organisations or other registered charities will be…
We provide information and practical support to everyone living with Ataxia-Telangiectasia. We also arrange transport and accommodation for people attending the specialist clinics.  We offer: support and contact between families with affected members support for affected individuals information about Ataxia-Telangiectasia (available in several languages) a…
01582 760 733
We help blind and partially sighted people get active and play sport. Sport and recreational activities can enhance the lives of people with visual impairments, by improving their health and increasing their social interaction. We encourage adults and children to participate in activities at all…
01926 424 247
We are a specialist, not for profit organisation. We offer therapeutic help if you, or someone your know, have been affected by a traumatic occurrence. Our therapists have been trained to help sufferers rebuild their lives and move on following a traumatic experience that has…
01788 560 800
We provide information and a contact point if you are searching for a private Speech and Language Therapists. For our members, we provide support and information on working as a independent Speech and Language Therapist All members are registered members of the Royal College of Speech and Language…
0203 002 3704
We work to stop asthma attacks and hope to cure asthma by funding world leading research and scientists, campaigning for change and supporting people with asthma to reduce their risk of a potentially life threatening asthma attack.We fight asthma in three ways: we fund world class…
0300 222 5800
An acoustic neuroma is a type of brain tumour which affects hearing. We provide information and support to people who are affected by acoustic neuroma and their families. We: publish a newsletter four times a year supply patient information support the non-medical needs of individual…
01246 550 011

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