County Durham's Families Information Service

We are an organisation that promotes the human rights of children and young people. One of the things that gets in the way of this is that, in general children aren’t taken as seriously as adults - many people still believe that ‘children should be…

0191 307 7030

We support children with heart disorders and their families, whatever the condition, wherever it is treated and have 2,500 families in membership throughout the UK. We offer: Advice and support to families Activity breaks for children with heart conditions Activity breaks for siblings of children…

+447777698581

STARS, or Syncope Trust And Reflex anoxic Seizures, aims to ensure that anyone presenting with unexplained loss of consciousness receives the correct diagnosis, the appropriate treatment, informed support and sign posting to the appropriate medical professional. STARS offers information and advice to patients, carers and…

01789 867 503

Rainbow Trust Children’s Charity supports seriously ill children and their families in the family home and local community. Families who have a child or young person up to the age of 18 with a life threatening or terminal condition (for example cancer, some neurological conditions,…

0191 300 1601

The Huntington's Disease Association provides support, advice and a listening ear to people living in families affected by Huntington’s Disease. We also provide advice and training to professionals working with people with Huntington's Disease. We have a website full of information about Huntington's Disease. We…

07900 922 522
0151 3315 444

We provide information and support about this recessive genetic iron overload disorder and work to raise awareness and encourage research. We provide advice and support to sufferers. A handbook and a quarterly newsletter is sent to members and we hold an annual conference. We have…

03030 401102

Anxiety UK is run by sufferers and ex-sufferers of anxiety disorders. We can provide support and help if you’ve been diagnosed with or suspect you may have an anxiety condition. With our help you can start to recover your confidence and forget your fear. We…

Infoline: 03444 775 774
Text Service: 07537 416 905

We aim to: support people affected by dyspraxia and their families promote better diagnosis and treatment for people who have dyspraxia help health and education professionals to help people with dyspraxia raise awareness and improve people's understanding of dyspraxia We do this by: publishing leaflets, booklets,…

Helpline: 01462 454 986
Head Office: 01462 455 016

We are a charity for people (adults and children) who grow up with a brother or sister with a disability or chronic illness. At Sibs we provide a telephone helpline and online support to parents, professionals and siblings. We also develop sibling groups by running…

01535 645 453

We are a Charity for helping people affected by Charcot-Marie-Tooth disease (also known as Peroneal Muscular Atrophy and Hereditary Motor and Sensory Neuropathy) and their families in the UK. We offer advice, support and information including: FREEPHONE Helpline for Advice and Support Information Leaflets Website…

0300 323 6316

County Durham's Families Information Service

Investing in Children

Heartline Families

STARS - Syncope Trust And Reflex anoxic Seizures

Rainbow Trust Children's Charity

Huntingtons Disease Association (England and Wales)

Haemochromatosis UK

Anxiety UK

Dyspraxia Foundation

Sibs - For brothers and sisters of disabled children and adults

CMT United Kingdom

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