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Fragile X Syndrome is the most common inherited cause of learning disability. In addition, Fragile X is a family of conditions and multiple members of families may be affected by it in different ways. We provide information and practical guidance to support and empower people…
01371 875 100
For children, for families, for schools. Special educational needs can often feel like a jigsaw of missing pieces. SENse Support Services was born from a passion to ensure children, young people, and their families, receive a 'full package' of assessment, support and intervention in special…
07440 669 250
Small Steps - Seize the Day is a small charity based in the north east of England that supports the families of children with Epilepsy or other similar neurological problems. In particular, those with complex health needs, cerebral palsy and pmld. We work with local…
07527 976 747
Alex, The Leukodystrophy Charity (Alex TLC) provides invaluable support and information to people affected by leukodystrophy. Leukodystrophies are genetic disorders that mainly affect the white matter of the central nervous system (i.e. the brain or spinal cord). There are more than 100 different known types…
0207 701 4388
We provide information, emotional support and advice to the families of and young visually impaired people. We offer a nationwide mentoring service to young VIP's enabling the sharing of experiences and providing support for each other. We also offer a friendly Parent Support Group.  We run…
07464 351 958
We are an independent, voluntary group run by parents whose deaf children have cochlear implants, offering contact, information and events for families whose children already have implants and for those who are considering cochlear implantation for their child. We offer lived experience of the difference that…
07854 543 846
We aim to: support people affected by dyspraxia and their families  promote better diagnosis and treatment for people who have dyspraxia help health and education professionals to help people with dyspraxia raise awareness and improve people's understanding of dyspraxia We do this by: publishing leaflets, booklets,…
Helpline: 01462 454 986
Head Office: 01462 455 016
Blind Life is made up of members from around County Durham, who have differing levels of sight loss.  We are very welcoming and friendly and enjoy friendship, lots of fun and laughter. One of our aims is to promote the welfare, independence and quality of…
01388 763 501
We offer free advice, information and support to people with glaucoma. We produce information, support research into the management and treatment of the condition and aim to improve public awareness of glaucoma. We also campaign for improved services for those with glaucoma. Our mission is to raise awareness of…
Sightline: 01233 64 81 70
We are a support group for parents of children with Cornelia de Lange Syndrome. We hold details of medical research and work with medical professionals by providing specialist information. Please see our website for further information.
01375 376 439

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