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We are an organisation that promotes the human rights of children and young people. One of the things that gets in the way of this is that, in general children aren’t taken as seriously as adults - many people still believe that ‘children should be…
0191 307 7030
We support children with heart disorders and their families, whatever the condition, wherever it is treated and have 2,500 families in membership throughout the UK. We offer: Advice and support to families Activity breaks for children with heart conditions Activity breaks for siblings of children…
+447777698581
Rainbow Trust Children’s Charity supports seriously ill children and their families in the family home and local community. Families who have a child or young person up to the age of 18 with a life threatening or terminal condition (for example cancer, some neurological conditions,…
0191 300 1601
The Huntington's Disease Association provides support, advice and a listening ear to people living in families affected by Huntington’s Disease. We also provide advice and training to professionals working with people with Huntington's Disease. We have a website full of information about Huntington's Disease.  We…
07900 922 522
0151 3315 444
We provide information and support about this recessive genetic iron overload disorder and work to raise awareness and encourage research. We provide advice and support to sufferers. A handbook and a quarterly newsletter is sent to members and we hold an annual conference. We have…
03030 401102
Anxiety UK is run by sufferers and ex-sufferers of anxiety disorders. We can provide support and help if you’ve been diagnosed with or suspect you may have an anxiety condition. With our help you can start to recover your confidence and forget your fear. We…
Infoline: 03444 775 774
Text Service: 07537 416 905
We aim to: support people affected by dyspraxia and their families  promote better diagnosis and treatment for people who have dyspraxia help health and education professionals to help people with dyspraxia raise awareness and improve people's understanding of dyspraxia We do this by: publishing leaflets, booklets,…
Helpline: 01462 454 986
Head Office: 01462 455 016
We are a charity for people (adults and children) who grow up with a brother or sister with a disability or chronic illness. At Sibs we provide a telephone helpline and online support to parents, professionals and siblings. We also develop sibling groups by running…
01535 645 453
We are a Charity for helping people affected by Charcot-Marie-Tooth disease (also known as Peroneal Muscular Atrophy and Hereditary Motor and Sensory Neuropathy) and their families in the UK. We offer advice, support and information including: FREEPHONE Helpline for Advice and Support Information Leaflets Website…
0300 323 6316
Making Changes Together was set up in County Durham so parents and professionals can work together to improve services for children and young people with additional needs. We gather information from parents at the forum conferences, through focus groups, emails, telephone calls, local support groups and more.…
0191 587 3541

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