County Durham's Families Information Service

We are a UK wide service supporting and empower families and individuals affected by all forms of Spinal Muscular Atrophy (SMA). We are advocates for better services and access to new treatments, raise awareness of the condition and help fund and facilitate research related initiatives. We…

01789 267 520

Whether you have just been diagnosed with Retinitis Pigmentosa (or one of the many related inherited retinal conditions) or have known about the condition for a while, we can support you and your family. Our website has lots of information to help you. We also produce a…

01280 821 334 (office)
0845 123 2354 (helpline)

We offer free advice, information and support to people with glaucoma. We produce information, support research into the management and treatment of the condition, and aim to improve public awareness of glaucoma. We also campaign for improved services for those with glaucoma. Our mission is to raise awareness of…

01233 64 81 64
Sightline: 01233 64 81 70

Occupational Therapy within County Durham and Darlington helps children and young people to participate as fully as possible in daily activities. We work with children and young people from birth up to 19 years of age who have difficulties or a disability which affects their…

0191 387 6359

We are a modern hospital providing a full range of diagnostic services and 24 hour walk-in services for urgent care. Our wards include an oncology day unit, a surgical ward for patients who have had general, orthopaedic and gynaecological surgery, a stroke rehabilitation and care of…

0844 811 8111

The National Rheumatoid Arthritis Society (NRAS) is a UK charity supporting adults and their families living with rheumatoid arthritis, and children, young people and their families affected by juvenile idiopathic arthritis. We also support health professionals treating the conditions. If you are a parent/carer of a child or…

01628 823 524

Tired Out is Family Fund’s new sleep support hub which aims to help parents and carers of disabled children to sleep better. It pulls sleep information and resources together in one place. This includes information about support available to families in their local area, useful…

01904 550 055

Caudwell Children recognise that disabled children and those with complex health needs must have access to the health care, adaptations and equipment they require. We offer vital support to families caring for a disabled child or young person. Our service can provide telephone, email…

07875 206 760

We provide support, assistance and information to families having a child affected with Patau’s syndrome (Trisomy 13) or Edwards syndrome (Trisomy 18) and their related disorders of partial Trisomy, Mosaicism and Deletions. We support families to make choices that are right for them and at all…

0330 088 1384

We are a charity offering support and information relating to heart conditions associated with Down's Syndrome. We can offer you advice, support and information but we are not a substitute for a qualified medical opinion. We will try to support you and your family before,…

0300 102 1644
Fax: 0300 102 1645

County Durham's Families Information Service

Spinal Muscular Atrophy Support UK

RP Fighting Blindness

International Glaucoma Association

Children’s Occupational Therapy

Hexham General Hospital

Juvenile Arthritis - kids get arthritis too!

Tired Out

Caudwell Children

SOFT UK

Down's Heart Group

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